Spina Bifida Clinic
At the OSF HealthCare Spina Bifida Clinic, you don’t have to face this journey alone. Our expert team is here to guide and support your family through every stage, from a new diagnosis to long-term care. Spina bifida comes with challenges, but with the right care, your child can grow, thrive and reach their fullest potential.
What is spina bifida?
Spina bifida is a condition where a baby’s spine doesn’t close completely before birth. This can cause nerve damage and affect movement, sensation and bladder or bowel control.
What to Expect at Your Appointment
When you visit the Spina Bifida Clinic for the first time, you’ll receive a thorough evaluation from our team of specialists. We’ll work with you to create a personalized care plan for your child, review their medical history, discuss any concerns and perform or schedule any necessary exams or tests.
Every appointment is an opportunity for you to share updates, learn about your child’s progress and plan next steps with your care team.
Meet Your Care Team
At the Spina Bifida Clinic, your child is supported by a dedicated team of experts who work together to care for the whole family. This team includes specialists in developmental pediatrics, neurosurgery, orthopedics, urology and more.
Each provider brings deep experience in caring for children with spina bifida. You’ll also have a clinic coordinator to help guide your visits, answer questions and connect you to helpful resources along the way.
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Frequently Asked Questions
How common is spina bifida?
Spina bifida affects about 1 in every 2,875 births in the United States. It’s one of the most common neural tube defects, but improved prenatal care and folic acid use have helped lower the number of cases in recent years.
Are babies with spina bifida active in the womb?
Yes, many babies with spina bifida are active in the womb. However, the level of movement can vary depending on the type and severity of the condition. Regular prenatal checkups and ultrasounds help monitor your baby’s activity and development.
What nutrient is needed to reduce spina bifida?
Folic acid is the key nutrient shown to significantly reduce the risk of spina bifida. It’s recommended that women who may become pregnant take 400 micrograms of folic acid daily, ideally starting before conception and continuing through early pregnancy.
Ask for a Referral
Need specialized care for your child’s spina bifida? Contact your child’s neurosurgeon, urologist or orthopedist about a referral to the Spina Bifida Clinic.
